Tag Archives: family

It’s a Boy!

last Thursday I accompanied Carmen to Fetal Photos, a place that takes ultrasound photos of your fetus and also creates a DVD of the movement of the fetus. Amazing. We found out we are going to have a baby boy (no doubt about it) and gosh did he move around! He did flips and just plain wiggled. Here is a photo:

Emily’s health issues

I just learned today that Emily’s GI specialist visit went o.k but she has to have more tests. She was told she has a “Mallor-Weiss Tear” from the bottom of her stomach to her esophagus. I’m doing more research on this to find out more about it. Needless to say I’m worried.

Speaking on Disabilities

I just received a call from a former colleague of mine who is purusing a PhD in Special Education at the University of Utah. She and I stay in contact over various things. I have been asked by her to speak to one of her University Classes in the fall on Tourette’s Syndrome (TS). The reason my friend asked me is because this disorder has been a significant part of my life for about 13 years.

My son, now 21, was diagnosed with TS when he was 9. We have been through hospitalizations, medications, behavior problems, learning difficulties, co-morbid conditions, socialization issues – you name it, we’ve been through it. My son has had some of the more severe symptoms associated with TS. Although he did not complete high school, I am happy to say that he is self-sufficient and has a decent job with salary and benefits. I am quite proud of him and the way he continues to cope with his disability.

I will be happy to share my perspective as a parent with the University students. As I reflect on the past decade+, memories begin to flood back that I haven’t thought about in awhile. Many are painful. Some experiences continue to be painful since my son is about to become a father and is scared to death because he never wanted to pass on his (what he calls) “defective” genes onto any offspring. But my experiences as a parent of a disabled child should bring some concrete-ness to many who can only know about the disorder from textbooks.

As an educator, I feel I possess the compassion to know the difficulties that children with disabilites face in school. As a candidate, I promote the concept of accomodations for all children in our educational system. As a human being, I advocate services and basic necessities for all – all based on my experiences which have given me the knowledge and compassion to advocate for these things.

Heard my grandchild’s heartbeat today!

Here is a link to an audio file of my grandbaby’s heartbeat! Heard today at 10am MST!

Heartbeat June 7, 2006

Test results

Brian isn’t diabetic. Now he has to undergo further testing.

Today’s visit

I met Carmen at her obstetrician’s office today. It was fun! We still cannot hear the heartbeat since she is only a little over 8 weeks along. So we made another “nurse” appointment for two weeks from today to hear the heartbeat.

I can’t wait!

Going to the obstecrician this Wednesday

I’m going with Carmen to the doctor this Wednesday. I’m so excited and nervous at the same time! We are hoping to hear the heartbeat.

Carmen came to see me on Saturday and brought me the loveliest bouquet of flowers for Mother’s Day!

Photo of me and Carmen

Carmen called me today and said she was off work early and she’d like to come visit. So she did! We had a great talk.

Here is Carmen with me today in front of my house:

Scare today

I got a call that Carmen was in the E.R. today with horrible abdominal pain. Of course I thought the worse about the baby.

The baby is fine, though. It appears the Carmen has a cyst on her ovary (this is the week for ovarian cysts in my family!) that is causing her pain. It’s really tiny and she’s been told she will just have to put up with it until after the baby is born. Poor thing!

The good news is that it has been determined through an ultrasound at the E.R. that Carmen is 6 weeks 4 days along and while the heartbeat couldn’t yet be detected, it could be seen – amazing! The aniticipated due date is December 24! What a holiday it will be!

Utah’s Uninsured Population Rising

Residents in Utah without health insurance increased by 40,000 in one year.

The ranks of Utah’s uninsured grew by 1 percent between 2004 and 2005, according to a recently released report from the Utah Department of Health.

There are about 300,000 Utahns without health insurance and 46 million Americans. The latter figure includes about 8 million children. According to the Deseret News article quoted above, Gov. Jon Huntsman has created a working group to study this issue and address the root cause of the alarming fact that so many of us are without health insurance.

I have been without health insurance for most of the last decade, so I can speak from personal experience to this issue.

The “root” cause is the profit-making corporate nature of health insurance companies and health care providers, including hospitals and nursing homes.

Health care is a basic human right. It is addressed and provided for in the Universal Declaration of Human Rights, a document which the U.S. became a signatory in 1948. To wit:

Article 25.

(1) Everyone has the right to a standard of living adequate for the health and well-being of himself and of his family, including food, clothing, housing and medical care and necessary social services, and the right to security in the event of unemployment, sickness, disability, widowhood, old age or other lack of livelihood in circumstances beyond his control.

There is no humane reason why so many Americans, and worldwide citizens for that matter, should suffer as a result of not being able to afford health care. It’s a basic human right.